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Isaiah has served as a FARA ambassador since 2024 and dedicates his time to the community of FA patients. He enjoys gaming, school, and talking to new people. His favorite FARA event is the Philadelphia symposium. Isaiah would tell someone newly diagnosed that while this is a major condition that will probably juristically change your life, there are new developments in medicine every day. While this condition can change your physical ability, it cannot change who you are as a person.

Sydni Dupre has served as a FARA ambassador since 2023 and dedicates her time to supporting the FA community and its efforts to search for a cure. She uses her social media presence to spread awareness about Friedreich's ataxia and to share her life, helping others learn about the effects of FA. One of her favorite FARA events is the Cure FA Soirée. Sydni would tell someone newly diagnosed that they are not alone in their struggles, and everyday we are one step closer to curing FA.

Noah has served as a FARA ambassador since 2020 and dedicates his time to building and connecting the FA community. Noah graduated in 2023 from Auburn University with a B.A. in journalism. He is a sports journalist but also runs his own blog page where he shares about his life with FA. His favorite FA event is the Cure FA Soirée in Oklahoma City. Noah would tell someone newly diagnosed, "All we can do is keep fighting and remain hopeful."

Tricia has served as a FARA Ambassador since 2019 and dedicates her time to participating in clinical trials and educating others about the importance of being involved. Her favorite FARA event is any rideATAXIA. Tricia would tell someone newly diagnosed to live each day to the fullest and learn to be proud of yourself.

Mekayla has served as a FARA ambassador since 2019 and dedicates her time to bringing awareness to Friedreichs Ataxia. She currently works as a Global Business Analyst, and in her free time she loves practicing new makeup looks. Her favorite FARA event is the FARA Energy Ball. Mekayla would tell someone newly diagnosed, “Life doesn't stop after diagnosis, we learn to adapt!”

Roxanne has served as a FARA ambassador since 2024 and dedicates her time to help find treatments for FA. Roxanne reads an impressive amount and is very hopeful that she can start to write again. She loves to play with her pet guinea pig, Caramel. Her favorite FARA event is the ICAR event in London this year. Roxanne would tell someone newly diagnosed, "Don't underestimate how important their attitude is to their prognosis."

Claire has served as a FARA ambassador since 2024 and dedicates her time to meeting new people and making her voice heard in the community. Claire is currently a junior in high school. She loves all of her classes and enjoys participating in extracurricular activities, such as her school's theater program and the manager for her school's volleyball and tennis teams. Her favorite events are the FARA & CHOP symposium and rideATAXIA Chicago. Claire would tell someone newly diagnosed, "Although it's a tough diagnosis, stay positive and face your challenges with a smile!"

Brona has served as a FARA ambassador since 2023 dedicates her time to increasing awareness in the FA community, learning more about FA and sharing that knowledge. Brona enjoys riding a trike, riding her pony Charmer (who she has had for 20 years), doing physio/hydro therapy exercises and learning new things. Brona has a job which she enjoys and now can do from home. She works for four days a week and, before working, she did several years of higher education. Her favorite FARA event is the FA Symposium in Philadelphia as she gets to meet so many individuals with FA. Brona would tell someone newly diagnosed, "Don't hide away if you are newly diagnosed with FA."

Megan has served as a FARA ambassador since 2020 and dedicates her time to help encourage research and treatments for FA and spread awareness of this disease. She likes to read books and learn about the entertainment business. Megan is the youngest of her family, and has a bachelor's degree in Psychology. Her favorite FARA events are the rideATAXIA events. Megan would tell someone newly diagnosed that it will get hard at times, but do not be afraid of asking for help.

Carly has served as a FARA ambassador since 2019 and dedicates her time to help find treatments for FA, having participated in four clinical trials so far. Carly is a creative artist who loves her pets and laying in the sun. Her favorite FARA event is the Energy Ball in Tampa Bay. Carly would tell someone newly diagnosed, "do what you can, while you can.”

Dillon has served as a FARA ambassador since 2024 and dedicates his time to raise awareness and show succession & positive stories of those in the FA and others in the disability community. He loves spending time in an outdoor environment or doing physical activities like playing wheelchair rugby, camping, or fishing. He also loves spending time with his friends and family and helping his community where needed. His favorite FARA event is the Lend Us Your Muscle. Dillon would tell someone newly diagnosed, “FA might seem challenging but always keep a positive outlook and remember, you can still do anything just in a different way but never give up and set long term goals that you want for yourself and focus on them to see and never look back”.

Dylan has served as a FARA ambassador since 2019 and dedicates his time to raise funds for research, spread awareness of this rare disease, and overall encourage a higher level of communication. He loves dogs and almost anything involving art. His favorite FARA event was the McDonnell Music Festival (2008-2017), followed closely by the Bullpen Open (donating to FARA for more than 20 years). Dylan would tell someone newly diagnosed, “Pay attention to those five senses but just as important is your sense of humor."