Showing 13–24 of 821 results for ''

Isaiah has served as a FARA ambassador since 2024 and dedicates his time to the community of FA patients. He enjoys gaming, school, and talking to new people. His favorite FARA event is the Philadelphia symposium. Isaiah would tell someone newly diagnosed that while this is a major condition that will probably juristically change your life, there are new developments in medicine every day. While this condition can change your physical ability, it cannot change who you are as a person.

Sydni Dupre has served as a FARA ambassador since 2023 and dedicates her time to supporting the FA community and its efforts to search for a cure. She uses her social media presence to spread awareness about Friedreich's ataxia and to share her life, helping others learn about the effects of FA. One of her favorite FARA events is the Cure FA Soirée. Sydni would tell someone newly diagnosed that they are not alone in their struggles, and everyday we are one step closer to curing FA.

Silvia has served as a FARA ambassador since 2024. She loves reading and going to the gym. Silvia loves sharing her experiences with other people with FA.

Noah has served as a FARA ambassador since 2020 and dedicates his time to building and connecting the FA community. Noah graduated in 2023 from Auburn University with a B.A. in journalism. He is a sports journalist but also runs his own blog page where he shares about his life with FA. His favorite FA event is the Cure FA Soirée in Oklahoma City. Noah would tell someone newly diagnosed, "All we can do is keep fighting and remain hopeful."

Anna has served as a FARA ambassador since 2024 and dedicates her time to raising awareness and fundraising for FA. Anna is a current junior in highschool. She likes to read, play archery, and hang out with her friends. Her favorite FARA event is rideATAXIA Philadelphia. Anna would tell someone newly diagnosed to keep living life to the fullest and have hope.

Tricia has served as a FARA Ambassador since 2019 and dedicates her time to participating in clinical trials and educating others about the importance of being involved. Her favorite FARA event is any rideATAXIA. Tricia would tell someone newly diagnosed to live each day to the fullest and learn to be proud of yourself.

Becca has served as a FARA ambassador since 2024 and dedicates her time to spreading awareness about the FA community and raising money for treatments. Becca is a junior in high school and she has four older siblings, including one sister who also has FA. She loves watching sports, going on walks with her 3 dogs, and Dunkin’ iced coffee! Her favorite FARA event is the “Night to Fight FA”. Becca would tell someone newly diagnosed, “You might feel alone when you are first diagnosed or like nobody understands, but the FA community is so caring and powerful that once you get involved you can feel how many people you have fighting for you.”

Mekayla has served as a FARA ambassador since 2019 and dedicates her time to bringing awareness to Friedreichs Ataxia. She currently works as a Global Business Analyst, and in her free time she loves practicing new makeup looks. Her favorite FARA event is the FARA Energy Ball. Mekayla would tell someone newly diagnosed, “Life doesn't stop after diagnosis, we learn to adapt!”

Roxanne has served as a FARA ambassador since 2024 and dedicates her time to help find treatments for FA. Roxanne reads an impressive amount and is very hopeful that she can start to write again. She loves to play with her pet guinea pig, Caramel. Her favorite FARA event is the ICAR event in London this year. Roxanne would tell someone newly diagnosed, "Don't underestimate how important their attitude is to their prognosis."

Claire has served as a FARA ambassador since 2024 and dedicates her time to meeting new people and making her voice heard in the community. Claire is currently a junior in high school. She loves all of her classes and enjoys participating in extracurricular activities, such as her school's theater program and the manager for her school's volleyball and tennis teams. Her favorite events are the FARA & CHOP symposium and rideATAXIA Chicago. Claire would tell someone newly diagnosed, "Although it's a tough diagnosis, stay positive and face your challenges with a smile!"

Brona has served as a FARA ambassador since 2023 dedicates her time to increasing awareness in the FA community, learning more about FA and sharing that knowledge. Brona enjoys riding a trike, riding her pony Charmer (who she has had for 20 years), doing physio/hydro therapy exercises and learning new things. Brona has a job which she enjoys and now can do from home. She works for four days a week and, before working, she did several years of higher education. Her favorite FARA event is the FA Symposium in Philadelphia as she gets to meet so many individuals with FA. Brona would tell someone newly diagnosed, "Don't hide away if you are newly diagnosed with FA."

Keep moving and never give up!