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FARAFARA Cure FA

Ataxian Athlete Initiative

Part of the mission of rideATAXIA is to “EMPOWER Ataxians by inspiring, motivating and providing opportunities to develop physical and mental strength. Since 2009, through the Ataxian Athlete Initiative (AAI), rideATAXIA has been facilitating the funding and purchase of adaptive cycling equipment for aspiring Ataxian Athletes so they may start their personal rideATAXIA adventure.

The AAI provides adaptive cycling equipment to people with Ataxia who have demonstrated the desire to stay active and healthy despite their disabilities.

The AAI is managed by rideATAXIA, a FARA program, with a mission to promote active lifestyles among FA patients through cycling events across the United States geared towards raising awareness and much-needed research funds.

AAI grants are administered through a competitive application process. Applicants are invited to submit an essay summarizing their experience with Ataxia and their efforts to stay active. Individuals then select the most appropriate adaptive cycling equipment to suit their abilities and describe how such equipment would help them to reach their fitness goals. AAI grants are awarded based on the merit of the applications, equipment requested, and resources available in terms of funding.

Applications will be available online and accepted in the spring, 2017. Awards will be announced in the Summer.

Applications are reviewed by a panel of Disabled Athletes, Ataxians, and other representatives of the ataxia community.

A video about the application process

 

Grants are awarded to applicants based on the following:

  • Diagnosis - Applicants must have been diagnosed with some form of Ataxia to qualify
  • Applicant’s perceived character, drive, and commitment to an active lifestyle
  • Financial Need
  • Detailed research and knowledge of equipment requested

The online application includes:

  • General Information: Name, Address etc.
  • Ataxia Diagnosis; FA, A-T, AOA, SCA, unknown etc.
  • Your story or Bio (3-5 paragraphs)
  • Your adaptive cycling experience level. We are interested in funding both avid adaptive cyclists and interested individuals who are new to the sport.
  • Detailed equipment request. Why/how you made your choice.
  • Itemized cost of request.
  • Financial Information: Monthly income and expenses for everyone in the household (parent, step-parent, spouse, domestic partner etc.)

Apply for an AAI Grant

  • Barry Rice - Catrike Expedition

    Barry Rice - Catrike Expedition

  • Bill Ramsey - Top End Force R

    Bill Ramsey - Top End Force R

  • Crystal Millering - Catrike Pocket

    Crystal Millering - Catrike Pocket

  • Hamid Mehrizi - Catrike Trail

    Hamid Mehrizi - Catrike Trail

  • Jennifer Deneau - Top End Excelerator XLT Pro Handcycle

    Jennifer Deneau - Top End Excelerator XLT Pro Handcycle

  • Justin Hernandez - Catrike Trail

    Justin Hernandez - Catrike Trail

  • Lauren Williams - Top End Excellerator XLT

    Lauren Williams - Top End Excellerator XLT

  • Mary Dieteman - Catrike Expedition

    Mary Dieteman - Catrike Expedition

  • Mary Fuchs - Catrike Villager

    Mary Fuchs - Catrike Villager

  • Mary Vida - Top End Excellerator XLT

    Mary Vida - Top End Excellerator XLT

  • Nadia Robertson

    Nadia Robertson

  • Nick Carbone - Top End Force Handcycle

    Nick Carbone - Top End Force Handcycle

  • Nicole Kramer - Catrike Trail

    Nicole Kramer - Catrike Trail

  • Patrick Cogan - Catrike Trail

    Patrick Cogan - Catrike Trail

  • Regina Russo - Top End Excellerator XLT

    Regina Russo - Top End Excellerator XLT

  • Tom Trovinger - Catrike Villager

    Tom Trovinger - Catrike Villager

  • Tricia Herman-Maul - Catrike Trail

    Tricia Herman-Maul - Catrike Trail

2016:

Alena Wolfson of Glendale, Arizona
Candace Honeycut of Grinnell, Iowa
Endrit Januzaj of Desan, Kosovo
Greg Ostrom of Glencoe, Ontario, Canada
Jacob Ferguson of Montgomery, Texas
Jolin Kowalski of Vicksburg, Michigan
Joshua Lamascus of Marina, California
Leslie Ballard of Yuma, Tennessee
Marinda Cauley of Chatanooga, Tennessee
 

2015:

Lee Bailey of Melbourne Australia
Marcos Alfonso Garcia Campo of Barcelona, Spain
Mandy Davis of Clinton, MO
Tiffany Gambill of Bridgewater, MA
Sean Mazeres of Woodland, CA
Kimberly Welch of Bridgeville, PA
Billie Wells of Southfield, MI

Funded by: Catrike, The FA Project, The Texas Irish Foundation, and a donation made in honor of Gladys Lacativo
 

2014:

Abby and Chase Yingling of Harrisburg, PA

Carl Estabrook of Rockport MA
Liam Dougherty of Philadelphia, PA
Amanda Hernandez of Graham, TX
Mary Fuchs, Sun Lakes, AZ

Funded by: The FA Project, Catrike, UVA Sun Systems,The Melting Pot and The Texas Irish Foundation
 

2013:

Lealan LaRoche of Atlanta, GA
Regina Russo of St. Petersburg, FL
Eric Pogulis of Elk River, MN
Liberty Griggs of Anchorage, AK
Alex Dagley of Frisco, TX
Barry Rice of Dublin, Ireland
Terrence O’Hanlon of Cleveland Australia.

Funded by: The FA Project, Catrike, UVA Sun Systems, The Texas Irish Foundation, and a donation in memory of Gladys Lacativo
 

2012:

Crystal Millering of High Ridge, MO
Hamid Mehrizi of Dublin, OH
Nicole Kramer of Villa Park, IL
Justin Hernandez of Graham, TX
Lauren Williams of Glen Burnie, MD

Mary Dieteman of Douglassville, PA
Tricia Herman-Maul of Yorkshire, NY.

Funded by: The FA Project, Catrike, UVA Sun Systems, and The Melting Pot
 

2011:

Tom Trovinger of Hagerstown, MD
Patrick Cogan of Lynn, MA
Mary Vida of Edgewater, FL
Bill Ramsey of Lynchburg, VA.

Funded by:  The FA Project, Catrike, Anna Maria Oyster Bar, UVA Sun Systems, and The Melting Pot
 

2010:

Nick Carbone of Fitchburg, MA
Jennifer Deneau of Detroit, MI.

Funded by: A grant from the Christopher and Dana Reeve Foundation
 

2009:

Nadia Robertson of Austin, TX.
 

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