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FARAFARA Cure FA

Allison Bouchard

Allison BHey! My name is Allison Bouchard and I am 23 years old living in Bowdoin, ME. I was diagnosed with FA in 2006 when I was 11, after my sister Noelle was diagnosed about a year earlier. We both live together with our family, her boyfriend Matt, and our two dogs. I've been using a wheelchair since I was in high school. I was always a clumsy kid growing up, so my family wasn't too alarmed when I started showing symptoms until Noelle (then 16) did. I can remember feeling fatigued during gym class as far back as in 1st or 2nd grade.

 

Life with FA has always been challenging, as I prefer to say I'm "living with it" instead of "fighting it" because I think it tends to diminish your accomplishments. I've been a part of the Ambassador Program since 2015 and I've gone to a handful of New England events since then – I have to credit FARA and the Ataxia community for helping me network and realize it's not just me against the world. You guys helped me channel my post-diagnosis energy once I finally slowed down enough to ask myself "ok, now what?" Over the years I've gone to college, traveled, worked for a large company, seen my favorite bands perform live, even ziplined a few times, and I'm always looking for what to chase after next.

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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