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FARAFARA Cure FA
rideATAXIA MaprideATAXIA CHICAGO rideATAXIA PHILLY rideATAXIA ORLANDO rideATAXIA DALLAS rideATAXIA NORCAL rideATAXIA SOCAL

2018 rideATAXIA SoCal

2018rideATAXIA SoCal

On February 24, 300 bikers lined up on Bolsa Chica State Beach to take on one of the most beautiful routes ever. With perfect weather and the sun shining, the ride itself was extremely enjoyable. Whichever route you ended up choosing, walking or biking, it was serene. The warmth of the sun and smell of the salt water was and incredible companion while completing the ride. Needless to say, it was a typical Southern California day.

There were so many people there besides the participants. The group was filled with friends, family, FA patients and I even met some folks there who just wanted to support. We had FA families fly in from all over including: Florida, Pennsylvania, Oregon, Washington and Philadelphia just to name a few. Outback Steakhouse and Lazy Dog Restaurant were there to give us all fuel at the end of the beautiful ride so it was pretty awesome… and delicious.

Since the route was extremely flat and pretty easy, during the ride was almost another social event. We were coasting along, passing by one another, having conversations, taking pictures, laughing and cheering one another on. I had a blast biking next to some of the best people and it really was one of the most enjoyable events I have ever been to. 

 2018rideATAXIASoCal2$73,000 dollars were raised for rideATAXIA SoCal 2018! That’s right, $73,000! Not only was this the second rideAtaxia ever held in Southern California, but it was the first time having the ride at this specific location and it was a success. After the ride was complete, there was a few minutes where Kyle Bryant had the mic and thanked everyone for showing up, the pharmaceutical companies that helped sponsor the event and of course, recognized the top teams and individuals who raised the most money.

Those moments, personally, make me extremely emotional. Spotlighting all the individuals and teams who worked hard to raise as much money as they could. To see how different organizations, companies and people who genuinely care to help. To be able to celebrate how everyone came together to help in finding an answer for Friedreich's Ataxia and funding research, it really is a wonderful thing.

Overall, rideATAXIA SoCal was awesome! Great food, good music, amazing people and we were all surrounded by the thought of hope. For one day, we can come together at events like this and feel not embarrassed or shy about having FA. It gives us a chance to relax and be comfortable knowing that we are not alone and can look at all the other people who are in this fight with us! Together, we will cure FA.

*All photos courtesy of Andy Clark (thank you Andy!). View the entire rideATAXIA Socal 2018 album HERE. Don't forget to like rideATAXIA on Facebook!

FrankiePerazzola


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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