Powering research to treat Friedreich’s Ataxia
Dear FA family,
Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.
Leading to the discovery and advancement of treatments for FA
Join a passionate community and change the course of this rare disease
Apply for a research grant and make an impact
Work with an experienced research community
Utilize FARA resources to help optimize the pace of research
Latest news from our community.
Webinar Recording: Solid Biosciences September 2025 Update
FARA News, Industry NewsSiblings Jake and Claire Juip face Friedreich's ataxia together
Industry NewsWebinar Recording: Larimar June 2025 Update
FARA News, Industry NewsPress Release & Community Statement: PTC Therapeutics Receives Complete Response Letter for Vatiquinone NDA
Industry News
August 2025 - Advocacy Newsletter
Advocacy
Take Action to Raise Awareness for FA—Submit a Proclamation Request!
AdvocacyJob Posting: Research Portfolio Manager
FARA News
FA Community Conversations FA Drug Development Pipeline Webinar: Recording Available on YouTube
EducationDesign Therapeutics Highlights Progress Across Lead GeneTAC® Programs and Reports Second Quarter 2025 Financial Results
Industry NewsMeet the 2025 FARA Fellows
FARA News, ResearchPress Release and Community Statement: Lexeo Therapeutics Announces FDA Breakthrough Therapy Designation for LX2006 in Friedreich Ataxia
Industry News
June/July 2025 - Advocacy Newsletter
Advocacy
Our upcoming events.
7th United Against Ataxia Hill Day
Advocacy
rideATAXIA Hometown St. Louis
Join us Saturday September 20th in Soulard for a ride/walk to benefit FARA!
rideATAXIA
Race for Matt & Grace
This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.
Grassroots
Fall for FARA to benefit rideATAXIA Team Megan
Fall for FARA is an event featuring food, auctions, games and a cornhole tournament to benefit Team Megan at rideATAXIA Philly.
rideATAXIA
rideATAXIA Hometown Twin Cities
Join us this September for a family-friendly ride along the Mississippi River Greenway Trail!
rideATAXIA
USF Research Reception Brunch
The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.
Education
The FARA Energy Ball
The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).
FARA Energy Ball
Fuzzy Buzzy Charity Golf Tournament 2025
The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.
Grassroots
Epic Game Day
The most epic of game days - to benefit FARA. The event will feature food, free-play games, and tournaments.
Grassroots
World Renowned Magician Chris Dugdale Benefit Performance
Magic show to benefit FARA with Chris Dugdale, world renown magician/mentalist, featured on Penn and Teller, Las Vegas shows, and many worldwide television shows.
Grassroots
rideATAXIA Philly 2025
Join us at Montgomery County Community College for an amazing day with our FAmily. Choose between a 4-, 8-, 26-, or 46-mile ride, or a 1.5-mile walk/ride on campus – there's something for everyone!
rideATAXIA
FARA & CHOP FA Symposium
This is a free day-long event filled with presentations for people living with FA and their families, with the option to participate in-person or virtually. The Symposium agenda includes information on clinical management, current research in FA, and other valuable insights for participants.
Education