Name: Goran Kovačić
Age: 34
Where do you call home? Samobor, Croatia
Education (degree(s): High school
Who do you live with? My parents
What’s a typical day for you? Training, work, walk every day for a minimum of 2 km with assistance.
How long have you known you are living with FA? Diagnosed 2 years ago, 2020
Are there any others with FA in your family? No
Describe your transition from walking to walker/wheelchair. I don’t use a wheelchair yet
What do you like to do to stay active and what type of exercises work for you to stay strong? I walk every day. I train 3 to 5 times a week
Do you have any hobbies or special interests? Computers and computer networks
What is a good trick to make daily life easier? Be active every day
When FA gets you down, what do you think/do to feel better? Talk to friends who know me best so they always encourage and cheer me up
What is one way living with FA has POSITIVELY affected your life? More active life and a healthy diet.
What is the best advice YOU could give to a person who has been newly diagnosed with FA? Try to live the most active life you can and eat a healthy diet.
“I have FA but FA doesn’t have me.” What does this statement mean to you? I live life as much as I can.
Interview by
Xhesika Peza
Please note that this post represents an individual’s experience and is not medical advice. Please consult with your doctor about the safest and best way to manage your FA diagnosis.