Consensus Clinical Management Guidelines For Friedreich’s Ataxia
FARA's goal is to improve treatment and medical outcomes for individuals living with FA. One way to do this is by having educational materials available to physicians and people living with FA. These guidelines are a giant step forward in documenting diagnosis, treatment and management of FA. Committed international physicians and researchers have critically evaluated medical literature, outcomes research and clinical practice for treating symptoms of FA, and have come together to prepare the first comprehensive Consensus Clinical Management Guidelines.
The guidelines are designed to cover nearly all symptoms and issues that can be relevant to Friedreich ataxia, therefore, not all chapters will be applicable to every person. We envision healthcare professionals and individuals with FA utilizing selected chapters as needed. Please read the User's Guide first for instruction on how best to utilize the full guidelines.
- User's Guide
- Consensus Clinical Management Guidelines (Full Text Available Only on the FARA Website)
- Medical Publication of Recommendations from the Guidelines in Orphanet Journal of Rare Diseases
A USB bracelet is available for you to store the Guidelines as well as your medical records. The bracelet provides a physician easy access to all of your medical information. Complete this consent form and email it to firstname.lastname@example.org to request a USB bracelet.