November 7th, 2020 - Save The Date!
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For the health and safety of our donors, families and community, we have transitioned this year's in-person FARA Energy Ball to a virtual event. We have also moved the date, in hopes that a late Fall timeframe might offer our supporters an opportunity to convene outdoors for small at-home viewing parties. We wish you and your family health, and thank you for your continued friendship and commitment to treatments and a cure for all families living with Friedreich's Ataxia.
The Avery Family & The FARA Team
For donation information, please contact Ava Forney (813) 600-8179 firstname.lastname@example.org
Thank you considering a donation to support FARA. Personal and corporate donations can be designated in honor of a particular person or in support of the FARA Energy Ball.
You can donate by credit card online by clicking the button below. Your transaction is safe, secure, and private. The online credit card processor charges 3.3% of your donation for their processing fee.
You can donate over the phone by calling Ava Forney at the FARA Energy Ball, (813) 600-8179, (includes international donations). We will need your name, address and credit card information. The credit card user fee charged to FARA is 2.6% of your donation.
By Mail or Fax
You can download the Credit Card Authorization form and mail it in or fax it to (813) 387-8102 (includes international donations). You can send a check or money order to FARA at:
The FARA ENERGY BALL
PO Box 26454
Tampa, FL 33623-6454
The Friedreich's Ataxia Research Alliance (FARA) is a 501 (c) 3 non-profit organization.
Donations to FARA are tax deductible. FARA's tax ID number is 52-2122720.
Adrian Fernandez Insurance / Holy Hog BBQ
Amalie Oil Company
Rick & Dixie Berman
Kier and Lauren Cooper
Gabos Family Charitable Fund
International Diamond Center
Joseph and Teresa Kadow
Tom and Kathy Shannon Family Foundation
Vanguard Protex Global, Inc
Dan and Pat Wright
Dr. Paul and Mrs. Avery Zaritsky
Academic Alliance in Dermatology
Advanced Regenerative Orthopedics
Frank and Anna Alfano
Beveridge Medical Associates, Inc / Snyder Medical Supplies
Brown & Brown Insurance
Clearwater Central Catholic High School
East Lake Pediatrics
Fallon Medica LLC
Scott and Kathy Fink
Michael Henry and Brigid Brennan
Michael and Nicole Mezrah
Monin Gourmet Flavorings
Ben and Beth Novello / Jim and Kaye Pollard
Quarles & Brady
Rick and Lisa Silva
Trinchero Family Estates
The 12th FARA Energy Ball will take place as a virtual event on Saturday, November 7, 2020. The program will be live streamed and will provide a virtual bidding platform for our Silent and Live Auction items.
If you wish to make an in-kind donation for use in our auction, please make your commitment by completing this
or emailing Ann Musheno at email@example.com.
Our organization appreciates anything you might be willing to give in support of our auction. This year, we have a special request for gift certificates or small items that can be easily mailed rather than large physical items (such as baskets) to allow for easy shipping.
If you have any questions about donating an item for this year’s auction, please contact FARA at 484-879-6160 or the 2020 Energy Ball Auction Co-Chairs Anna Alfano at firstname.lastname@example.org; or Amy Hull at email@example.com
Honorary Chair Council
Suzanne and Paul Avery, Chairman, FARA Board of Directors
Ron Bartek, President, FARA
Judy Genshaft, PhD, President, USF
Tara and Tod Leiweke, CEO & President, Seattle Hockey Partners LLC
Charles J. Lockwood, M.D., M.H.C.M. Senior Vice President, USF Health
Janell and Steve Griggs, Tampa Bay Lightning CEO
Honorary Committee Members
Anna & Frank Alfano
Lori & Anthony Barkett
Debbie & Bob Basham
Sandy & Bob Callaghan
Trudy & John Cooper
Tanya & Herman Fernandez
Sarah & Jason Foglia
Lori & Matt Hill
Amy & Kurt Hull
Mary & Paul Jacobs
Pamela & Chris Kelsch
Lisa & Vic Lafita
Dawn & Kevin Lambert
Pastor Jane McDonough
Kaye & Jim Pollard
Nancy & Brad Rex
Kathy & Doug Rothschild
Sandi & Chris Sullivan
Georgette & Chris Tsavoussis
Kelly & Lou Varsames
Bridget & Richard Verrecchia
Heidi & Bill Wright
Avery Lowry Zaritsky
Theresa Zesiewicz, MD FAAN
Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Most individuals have onset of symptoms of FA between the ages of 5 and 18 years. Adult or late onset FA is less common, <25% of diagnosed individuals, and can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.
For a summary of research progress made possible by proceeds from the Energy Ball, Click Here.