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Home > FARA Events

FARA Events

Check out some of our upcoming fundraisers, rideATAXIA events, community education sessions, webinars, and more!

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43 events found.

Events

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  • List
  • Month
  • Day
Today
  • June 2025

  • Tue 24
    Logo for Education Event with Pharma

    An Informational Webinar with Larimar Therapeutics

    June 24, 2025 @ 12:00 pm - 1:00 pm
    Virtual
  • Sun 29
    rideATAXIA Hometown logo

    rideATAXIA Hometown Boston

    June 29, 2025 @ 9:00 am - 12:30 pm
    Lexington Visitors Center 1875 Massachusetts Ave, Lexington, MA, United States
  • July 2025

  • Fri 18
    Grassroots events logo

    43rd Annual Claxton Classic Golf Tournament

    July 18, 2025 @ 7:30 am - 2:00 pm
    Compass Pointe Golf Course 9010 Fort Smallwood Rd, Pasadena, MD, United States
  • Fri 25
    Grassroots events logo

    Fine Arts for FA: Curtain Call for a Cure

    July 25, 2025 @ 7:00 pm - 9:00 pm Fine Arts for FA: Curtain Call for a Cure
    O'Gorman High School 3201 S Kiwanis Ave, Sioux Falls, SD
  • Sat 26
    Grassroots events logo

    Fine Arts for FA: Curtain Call for a Cure

    July 26, 2025 @ 7:00 pm - 9:00 pm Fine Arts for FA: Curtain Call for a Cure
    O'Gorman High School 3201 S Kiwanis Ave, Sioux Falls, SD
  • August 2025

  • Wed 6
    FARA education logo

    Community Conversations: FA Drug Development Pipeline

    August 6, 2025 @ 12:00 pm - 1:00 pm
    Virtual
  • Sat 9
    Grassroots events logo

    Swing for a Cure: Softball Tournament

    August 9, 2025
    Greentown Athletic Club 9944 Cleveland Avenue NW, Uniontown, OH
  • Sun 10
    Grassroots events logo

    Rock ‘N’ Jock Charities: Night of Entertainment

    August 10, 2025
    The Crowne Plaza Warwick 801 Greenwich Ave, Warwick, RI
  • Mon 11
    Grassroots events logo

    Rock ‘N’ Jock Charities: Golf Tournament

    August 11, 2025
    Potowomut Golf Club 439 Ives Road, East Greenwich, RI
  • Sat 16
    Grassroots events logo

    8th Annual Race for Matt & Grace Golf Tournament

    August 16, 2025 @ 12:00 pm - 5:00 pm
    Valley Country Club 251 New London Avenue, Warwick, RI
  • Sun 17
    Grassroots events logo

    Softball Clinic for a Cause

    August 17, 2025 @ 9:00 am - 2:00 pm
    Bolen Park Field #4 42405 Claudia Drive, Leesburg, VA, United States
  • Sun 24

    Team FARA: Liam Kruesi Aquabike Race

    August 24, 2025
    Fort De Soto Park Anderson Blvd., St. Petersburg, United States
  • September 2025

  • Wed 10
    Logo for Education Event with Pharma

    An Informational Webinar hosted by Solid Biosciences

    September 10, 2025 @ 12:00 pm - 1:00 pm
    Virtual
  • Fri 12
    Grassroots events logo

    Tee It up Fall Flower Sale Delivery Day

    September 12, 2025
    Grandview Heights and Marble Cliff Ohio
  • Fri 12
    Grassroots events logo

    GolfATAXIA 2025

    September 12, 2025
    Beacon Hill Golf Club 6011 Majestic Oaks Dr, Commerce Township, MI
  • Sat 13
    Grassroots events logo

    Teeing Up for Tye

    September 13, 2025
    Mill Creek Country Club 1610 Club Circle, Salado, TX, United States
  • Sat 13
    rideATAXIA Hometown logo

    rideATAXIA Hometown Cleveland

    September 13, 2025 @ 9:30 am - 1:00 pm
  • Wed 17
    FARA advocacy logo

    7th United Against Ataxia Hill Day

    September 17, 2025
    Virtual
  • Sat 20
    rideATAXIA Hometown logo

    rideATAXIA Hometown St. Louis

    September 20, 2025 @ 8:15 am - 12:00 pm
    Hammerstone's 2028 S 9th St, Saint Louis, MO, United States
  • Sat 20
    Grassroots events logo

    Race for Matt & Grace

    September 20, 2025 @ 8:30 am - 2:00 pm
    Rhode Island College 600 Mount Pleasant Ave., Providence, RI
  • Sat 20
    Grassroots events logo

    Fall for FARA to benefit rideATAXIA Team Megan

    September 20, 2025 @ 12:00 pm - 4:00 pm
    Pelham Falls Clubhouse 6 Chatley Way, Greer, SC
  • Sun 21
    rideATAXIA Hometown logo

    rideATAXIA Hometown Twin Cities

    September 21, 2025 @ 9:00 am - 1:30 pm
    Schaar's Bluff Gathering Center 8395 127th St E, Hastings, MN
  • Sat 27
    FARA education logo

    USF Research Reception Brunch

    September 27, 2025 @ 10:00 am - 12:30 pm
    USF Health Morsani College of Medicine & Heart Institute 560 Channelside Dr, Tampa, United States
  • Sun 28
    Grassroots events logo

    Fuzzy Buzzy Charity Golf Tournament 2025

    September 28, 2025
    Windham Country Club 1 Country Club Drive, Windham, NH, United States
  • October 2025

  • Sat 4
    Grassroots events logo

    Epic Game Day

    October 4, 2025 @ 12:00 pm - 4:00 pm
    Natural Twenty Games 4136 E Sunset Road, Henderson, NV
  • Sat 4
    Grassroots events logo

    World Renowned Magician Chris Dugdale Benefit Performance

    October 4, 2025 @ 7:00 pm - 8:20 pm
    Calvary United Methodist Church 301 Rowe Blvd, Annapolis, MD, United States
  • Sun 12
    FARA education logo

    Welcome Reception (FA Symposium)

    October 12, 2025 @ 5:00 pm - 6:30 pm
    Crowne Plaza - King of Prussia 260 Mall Boulevard, King of Prussia, PA, United States
  • Sat 25
    Grassroots events logo

    #CureFA Baseball Exhibition Game

    October 25, 2025 @ 2:00 pm - 6:00 pm
    Bob Warn Field 931 N 1st St, Terre Haute, IN
  • Sat 25
    Grassroots events logo

    Mattoberfest 2025

    October 25, 2025 @ 5:00 pm - 10:00 pm
    Narragansett Brewery 271 Tockwotton Street, Providence, RI
  • November 2025

  • Sun 2

    Team FARA: TCS New York City Marathon

    November 2, 2025
    new york Thoughout the City, New York, NY, United States
  • Sat 8
    rideATAXIA Dallas logo

    rideATAXIA Dallas 2025

    November 8, 2025
    Lewisville Railroad Park Lewisville, TX, United States
  • Sat 15
    Grassroots events logo

    Poker Run to Cure FA

    November 15, 2025 @ 11:00 am - 4:00 pm
    Armstrong Park - Vian Community Center 1011 North Thornton Street, Vian, OK
  • Fri 28
    Grassroots events logo

    Juip family / FBMJ Movie Fundraiser for FARA 2025

    November 28, 2025 @ 6:45 pm - 10:30 pm
    AMC Livonia 20 19500 Haggerty Road, Livonia, MI
  • December 2025

  • Fri 12
    Grassroots events logo

    Kendra Scott Gives Back VIRTUAL Event

    December 12, 2025 - December 15, 2025
    Online
  • Sun 14
    Grassroots events logo

    Kendra Scott Gives Back In-Store Event

    December 14, 2025 @ 2:00 pm - 4:00 pm
    Kendra Scott - Spring Creek Plaza 1452 S. Bryant Ave., Edmond, OK
  • Tue 16
    FARA education logo

    FA Community Conversations: FA Cardiac Disease

    December 16, 2025 @ 7:00 pm - 8:00 pm
    Virtual
  • February 2026

  • Sat 14
    Grassroots events logo

    Pull for a Cure

    February 14 @ 2:00 pm - 10:00 pm
    Tampa Bay Sporting Clays 10514 Ehren Cutoff, Land O' Lakes, FL, United States
  • Sat 28
    FARA advocacy logo

    Rare Disease Day

    February 28 Rare Disease Day
    Global
  • March 2026

  • Sat 7
    Grassroots events logo

    Hope for ToMORROW

    March 7 @ 6:00 pm - 10:00 pm
    The Bryn Mawr School 109 West Melrose Avenue, Baltimore, MD, United States
  • Sat 14
    FARA education logo

    Houston FA Research Reception

    March 14
    Embassy Suites by Hilton The Woodlands® at Hughes Landing 1855 Hughes Landing Blvd, The Woodlands, Texas
  • Fri 20
    Logo for Education Event with Pharma

    An Informational Webinar with Larimar Therapeutics

    March 20 @ 12:00 pm - 1:00 pm
    Virtual
  • Thu 26
    Grassroots events logo

    FARA Young Professionals Networking Event

    March 26 @ 5:00 pm - 7:00 pm
    World of Beer Avion Park 5311 Avion Park Dr, Tampa, FL
  • Sat 28
    Grassroots events logo

    Hope for a Cure

    March 28 @ 6:00 pm - 11:00 pm
    The Hope Club 6 Benevolent St, Providence, RI
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