Dear friends,

Thanks to your incredible generosity, we are on track to fund over $8M in research this year. This work spans across our grant program, the Collaborative Clinical Research Network, FARA directed research like the TRACK-FA study, and institutional support of the FA Center of Excellence at Children's Hospital of Philadelphia and the FA Accelerator Program at the Broad Institute. These are projects that will provide new insights into FA and bring new therapies to the treatment pipeline. You brought the resources to fund these critical projects by cycling at rideATAXIA, hosting your own grassroots events, attending the Energy Ball, and giving to our most recent #GiftofResearch campaign (which has thus far earned over $195,000 of the $200,000 matching pledge!). I am so honored to be a part of a community that rallies together to make research progress a reality. Wishing you a happy holiday season and a new year with continued progress towards treatments and a cure for FA.

Our December Monthly Update also provides information on the following topics:

  • Pharma News
  • FARA Funded Research
  • Broad Institute Friedreich's Ataxia Accelerator
  • FARA Ambassador, Shandra Trantham featured in People Magazine
  • Minutes of Science
  • Open & Enrolling Studies
  • The Pathway


Read the Full Monthly Update