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FARAFARA Cure FA

Troy Leslie

TroyLeslieMy name is Troy Leslie I am from Perth, Australia and I am 16 years old and my Mum noticed me being clumsy around 4 years of age, I was diagnosed with FA on my 12th birthday.

I can’t walk long distances and that really is disappointing but when walking goes away a wheelchair comes to play and I can do incredible things in a wheelchair such as basketball and Kyle Bryant Inspires me to do so.

Because I have FA, I play basketball in a wheelchair. So now a wheelchair or motorised scooter is the way I live and I am not ashamed of it no matter what others say about me and I will not hide it. 

 

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About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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