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FARAFARA Cure FA

Energy Ball

Image courtesy of Joe Photo
 

Dear Friends,

Thank you for being a part of this year's 2018 FARA Energy Ball. Together we raised $2.5 million in support of FA research! Due to your generosity during this year's Fund a Cure, we raised $530,000 which was matched by the CureFA Foundation/ the Hamilton and Finneran Families We are grateful for you- the generous Tampa Community and our FAmily. We are all on this Journey to a Cure! Together we will Cure FA!

With gratitude,
The Avery Family and The FARA Team

Thank you considering a donation to support FARA. Personal and corporate donations can be designated in honor of a particular person or in support of the FARA Energy Ball.

Online

You can donate by credit card online by clicking the button below. Your transaction is safe, secure, and private. The online credit card processor charges 3.3% of your donation for their processing fee.

 

 

By Phone

You can donate over the phone by calling Ava Forney at the FARA Energy Ball, (813) 600-8179, (includes international donations). We will need your name, address and credit card information. The credit card user fee charged to FARA is 2.6% of your donation.

By Mail or Fax

You can download the Credit Card Authorization form and mail it in or fax it to (813) 387-8102 (includes international donations). You can send a check or money order to FARA at:

The FARA ENERGY BALL
PO Box 26454
Tampa, FL 33623-6454

The Friedreich's Ataxia Research Alliance (FARA) is a 501 (c) 3 non-profit organization.
Donations to FARA are tax deductible. FARA's tax ID number is 52-2122720.

 
 

Energy Ball Presenting Sponsors

Energy Ball Platinum Sponsors

Energy Ball Diamond Sponsors

Energy Ball Gold Sponsors

Energy Ball Media Sponsors

Amalie Oil Company
AT&T
Rick & Dixie Berman
The Burrows Hill Foundation
Kier and Lauren Cooper
Mike & Sheila Ingram
John & Madison Isner
Jabil Inc.
O'Connor Capital Partners
Pfizer, Inc.
Seminole Hard Rock Hotel & Casino
Tom and Kathy Shannon Family Foundation
Thomas Financial
Trinchero Family Estates
Christopher & Georgette Tsavoussis
USF Foundation
Vanguard Protex Global
Louis and Kelly Varsames
Julie Wooley
Dan & Pat Wright
Paul and Avery Zaritsky

908 Group
A1HR
Academic Alliance in Dermatology
Adrian Fernandez Insurance, Inc.
Frank & Anna Alfano
Berkeley Preparatory School
Breakthru Beverage Company
Brown & Brown Insurance
Dr. Robert Dean
Delicato Family Vineyards
East Lake Pediatrics
Fallon Medica LLC
Ferman Motor Car Company
Fidelity Investments Tampa Bay
Fintech
Jason & Sarah Foglia
Bob & Katina Johnston
Victor & Lisa Lafita
Dan & Kerry McMurtrie
The Patron Spirits Company
Jim & Kaye Pollard and Ben & Beth Novello
Quarles & Brady, LLP
Rick & Lisa Silva
SunTrust Banks
Tampa Bay Sporting Clays/ Mezrah
USF Health
VSEM Alumni

Award winning Auctioneer Scott Robertson will be our auctioneer for this event.
For more information on Scott go to www.thevoe.com

For a summary of research progress made possible by proceeds from the Energy Ball, Click Here.
 

To access the list of Unique Experiences offered in our silent auction, please click here.
The full silent auction list coming soon.




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Honorary Chair Council

Suzanne and Paul Avery, Chairman, FARA Board of Directors
Ron Bartek
, President, FARA
Judy Genshaft, PhD, President, USF
Tara and Tod Leiweke, CEO & President, Seattle Hockey Partners LLC
Charles J. Lockwood, M.D., M.H.C.M.  Senior Vice President, USF Health

Honorary Chairs

Janell and Steve Griggs, Tampa Bay Lightning CEO


Honorary Committee Members

Anna & Frank Alfano
Seth Appelbaum
Alison Avery
Michael Barbaro
Lexi Barkett
Lori & Anthony Barkett
Debbie & Bob Basham
Steve Blair
Denise & Tom Bradley
Sandy Callaghan
Sofia Parker Chang
Lauren Cooper
Trudy & John Cooper
Lynn Cristina
Janey DePew
Tanya & Herman Fernandez
Sarah & Jason Foglia
Suzanne & Paul Gabos
Lori & Matt Hill
Bill Horne
Amy & Kurt Hull
Mary & Paul Jacobs
Pamela & Chris Kelsch
Lisa & Vic Lafita
Dawn & Kevin Lambert
Susan McLaughlin
Pastor Jane McDonough
Aarti Patel
Beth Piekarczyk
Kaye & Jim Pollard
Nancy & Brad Rex
Susie & Mitchell Rice
Mary Ridgeway
Julie Robertson
Kathy & Doug Rothschild
Wendy Ryan
Liz Smith 
Sheree' & Jeff Smith
Susie Snowdon
Nicole Strothman
Sandi & Chris Sullivan
Georgette & Chris Tsavoussis
Kelly & Lou Varsames
Richard Verrecchia
Heidi & Bill Wright
Avery Lowry Zaritsky
Theresa Zesiewicz, MD FAAN
 

 

Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Most individuals have onset of symptoms of FA between the ages of 5 and 18 years. Adult or late onset FA is less common, <25% of diagnosed individuals, and can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.

For a summary of research progress made possible by proceeds from the Energy Ball, Click Here.

 
 

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