rideATAXIA began in 2007 with 2 people on bikes (trike for me) and a goal to raise $30,000. We had no idea how we were going to get there. However, our family and friends answered the call and that year we raised over $40,000!
Now the circle of friends and FAmily has expanded with 6 rides across the US and over 2,000 participants annually. It's no longer just my family, there are over 100 FA families involved in the ride. We are all in this together. YOU helped the FA community raise over $1M for FARA through the rideATAXIA program this year. Thank you.
rideATAXIA is one piece of the funding that keeps FARA pushing the pace of research advancement. We have a grassroots fundraising program with >65 events that raises over $1M and the FARA Energy Ball raised over $1.7M.
This is what fuels research progress, and it starts with you.
During 2016, FARA received letters of intent (LOIs) from 38 researchers and invited 25 of them to submit grant applications. Following the peer-review process, 16 of these new projects have been awarded funding. Additionally, continuation funds for a second year were provided for 12 projects. FARA has provided a total amount of $4.96 million in research funding in 2016. This amount includes ongoing support for the Collaborative Clinical Research Network (CCRN) and the Penn Medicine/CHOP Center of Excellence, as well as the major Biomarker development initiative, spearheaded by FARA.
Together, we are reaching important milestones towards life changing therapies. We envision a day when FA patients no longer hear the words- "no treatment, no cure." Your support is making that vision a reality.
Join us at one or more of our locations in 2017. We will alert you when ride registration opens throughout the year.
SoCal[+] - March 4
Dallas - April 1 - Registration open at rideataxia.org/dallas.
Atlanta[+] - TBD
NorCal - June 10
Chicago - July 23
Philly - October 15
Orlando - November 12