JOIN THE TEAM!
Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. Whether it’s participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved—Team FARA is for everyone!
FARA has been named an Official Charity Partner for the 2025 TCS New York City Marathon on November 2, 2025. FARA has a limited number of entries available, which will be allocated through an application process — currently open at link below. Applicants will be notified if they have been selected the first week of April.
The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.
Education
The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).
FARA Energy Ball
The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.
Grassroots
The most epic of game days - to benefit FARA. The event will feature food, free-play games, and tournaments.
Grassroots
Magic show to benefit FARA with Chris Dugdale, world renown magician/mentalist, featured on Penn and Teller, Las Vegas shows, and many worldwide television shows.
Grassroots
Join us at Montgomery County Community College for an amazing day with our FAmily. Choose between a 4-, 8-, 26-, or 46-mile ride, or a 1.5-mile walk/ride on campus – there's something for everyone!
rideATAXIA
This is a free day-long event filled with presentations for people living with FA and their families, with the option to participate in-person or virtually. The Symposium agenda includes information on clinical management, current research in FA, and other valuable insights for participants.
Education
Enjoy an Octoberfest event for FARA in Matt DiIorio's memory.
Grassroots
FARA is an Official Charity Partner for the 2025 TCS New York City Marathon. Six members of Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA).
Grassroots
Get ready for an amazing day at Lewisville Railroad Park! Whether you're up for a 15, 10, or 4.5-mile ride, or a 1.5-mile walk/ride, there's something for everyone.
rideATAXIA
Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.
Advocacy