JOIN THE TEAM!
Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. Whether it’s participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved—Team FARA is for everyone!
FARA has been named an Official Charity Partner for the 2025 TCS New York City Marathon on November 2, 2025. FARA has a limited number of entries available, which will be allocated through an application process — currently open at link below. Applicants will be notified if they have been selected the first week of April.
Join Design Therapeutics for a webinar on June 11 at 7PM ET with speaker Chris Storgard, Chief Medical Officer at Design Therapeutics, who will discuss the FA GeneTAC® DT-216P2 program and upcoming clinical trials.
Education
Join our local Boston committee for a family-friendly ride along the original battlefields where the Revolutionary War began! The Boston FA community has a strong history of raising funds for FA research. This will be our third annual rideATAXIA Hometown Boston event.
rideATAXIA
Golf tournament. Entry includes breakfast, green fees, cart, driving range, and lunch.
Grassroots
Save the date for rideATAXIA Chicago! More details to come soon!
rideATAXIA
Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.
Grassroots
Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.
Grassroots
Softball tournament 10U Rec Friendly. $125/Team for 2 Games. Features Bet & 50/50 Raffles, Concession Stand, No Gate Fees, and Shirts for Pre-Order.
Grassroots
A Night of Entertainment featuring Steve Smith and The Nakeds with special guests, a silent auction, dinner, drinks and dancing.
Grassroots
Golf Tournament
Grassroots
Golf tournament benefitting The Race for Matt & Grace, Inc.
Grassroots
This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.
Grassroots