JOIN THE TEAM!
Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. Whether it’s participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved—Team FARA is for everyone!
Join the Juip Family and FBMJ at the movies to watch WICKED: FOR GOOD!
Grassroots
Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.
Advocacy
The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).
FARA Energy Ball