Fundraising Perks

By joining and fundraising for Team FARA, you can earn the following gifts by level:

  • Raise $100 – Team FARA Performance T-Shirt
  • $500 – FARA Travel Mug
  • $1,500 – Event Registration Reimbursement (Up to $150)
  • $5,000 – Item of Choice from Cure FA Store
Three women at a fundraising event

TCS New York City Marathon

FARA has been named an Official Charity Partner for the 2025 TCS New York City Marathon on November 2, 2025. FARA has a limited number of entries available, which will be allocated through an application process — currently open at link below. Applicants will be notified if they have been selected the first week of April.

Apply for TCS New York City Marathon
TCS New York City Marathon 2025

Upcoming Events

EVENT | Oct 25 2025

#CureFA Baseball Exhibition Game

Head Coach Tracy Archuleta and Indiana State baseball are set to host the sixth annual CUREFA Game!

Grassroots
Bob Warn Field, Terre Haute
EVENT | Oct 25 2025

Mattoberfest

Enjoy an Octoberfest event for FARA in Matt DiIorio's memory.

Grassroots
Narragansett Brewery, Providence
EVENT | Nov 2 2025

Team FARA: TCS New York City Marathon

FARA is an Official Charity Partner for the 2025 TCS New York City Marathon. Six members of Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA).

Grassroots
new york, New York
EVENT | Nov 8 2025

rideATAXIA Dallas 2025

Get ready for an amazing day at Lewisville Railroad Park! Whether you're up for a 15, 10, or 4.5-mile ride, or a 1.5-mile walk/ride, there's something for everyone.

rideATAXIA
Lewisville Railroad Park, Lewisville, Texas
EVENT | Nov 15 2025

Poker Run to Cure FA

Hop in your car, jeep, or any motorized vehicle and enjoy a scenic drive around eastern Oklahoma for FA! Collect poker chips along the way for a chance to score big for FARA.

Grassroots
Armstrong Park – Vian Community Center, Vian
EVENT | Feb 28 2026

Rare Disease Day

Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.

Advocacy
Global