Hi everyone! My name is Dirk Desserault and I am currently 35 years old.
I have always tried to live my life seeing the glass as half full. Even being diagnosed with Friedreich's ataxia at age 14 I simply viewed it as a hurdle, not a death sentence. Growing up in a fairly rural area meant that any exposure to other ataxians was a very rare occurrence. So my well-intentioned mom took to the internet trying to find someone that I could relate to, and help me understand my new life. To our amazement she found someone not much older than I was who only lived 20 minutes away.