LEARN ABOUT FA FROM INDIVIDUALS WITH FA, FAMILIES, RESEARCHERS, & MORE

Attend an Educational Event

The Friedreich’s Ataxia Research Alliance (FARA) hosts several educational events throughout the year including webinars, regional research receptions, and the annual Friedreich’s ataxia (FA) Symposium in Philadelphia which can be attended virtually or in-person.

These events highlight updates on the FA drug development pipeline, clinical management of FA, insights on living with FA and more. Speakers include researchers and pharmaceutical partners working on FA, clinicians with FA expertise, and individuals with FA and their caregivers.

Learn About FARA’s Educational Events
Team of people
GATHER TO RAISE FUNDS AND AWARENESS FOR FA

Attend a Community Event

With the help of local communities around the country, FARA hosts a wide array of events such as fundraisers and advocacy events. These events are one of many ways to contribute to FA awareness and finding treatments and cures.

For individuals living with FA and their families, attending community events offers invaluable opportunities to connect with others on the same journey, feel empowered, develop the skills and confidence to advocate for themselves, and witness first-hand the collective strength of community.

Learn About FA Community Events Find a Community Event Near You
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Upcoming Community Events

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EVENT | Jul 18 2025

43rd Annual Claxton Classic Golf Tournament

Golf tournament. Entry includes breakfast, green fees, cart, driving range, and lunch.

Grassroots
Compass Pointe Golf Course, Pasadena, Maryland
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rideATAXIA Chicago logo
EVENT | Jul 20 2025

rideATAXIA Chicago 2025

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
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EVENT | Jul 25 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls
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EVENT | Jul 26 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls
View event details
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EVENT | Aug 9 2025

Swing for a Cure: Softball Tournament

Softball tournament 10U Rec Friendly. $125/Team for 2 Games. Features Bet & 50/50 Raffles, Concession Stand, No Gate Fees, and Shirts for Pre-Order.

Grassroots
Greentown Athletic Club, Uniontown
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EVENT | Aug 10 2025

Rock 'N' Jock Charities: Night of Entertainment

A Night of Entertainment featuring Steve Smith and The Nakeds with special guests, a silent auction, dinner, drinks and dancing.

Grassroots
The Crowne Plaza Warwick, Warwick
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EVENT | Aug 11 2025

Rock 'N' Jock Charities: Golf Tournament

Golf Tournament

Grassroots
View event details
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EVENT | Aug 16 2025

8th Annual Race for Matt & Grace Golf Tournament

Golf tournament benefitting The Race for Matt & Grace, Inc.

Grassroots
Valley Country Club, Warwick
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FARA advocacy logo
EVENT | Sep 17 2025

7th United Against Ataxia Hill Day

Advocacy
Virtual
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Grassroots events logo
EVENT | Sep 20 2025

Race for Matt & Grace

This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.

Grassroots
Rhode Island College, Providence
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rideATAXIA Hometown logo
EVENT | Sep 21 2025

rideATAXIA Hometown Twin Cities

Join us this September for a family-friendly ride along the Mississippi River Greenway Trail!

rideATAXIA
Scharr’s Bluff Gathering Center, Hastings, Minnesota
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FARA Energy Ball
EVENT | Sep 27 2025

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
Tampa Marriott Water Street, Tampa, Florida
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SUPPORT FARA IN THE SEARCH FOR TREATMENTS AND CURES

FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Learn About the FARA Ambassador Program Meet the Ambassadors
Team of pople at event

Meet the Community

Photo of Kailey Newcity
Blog | Jun 30, 2025

Meet the Community: Kailey Newcity

Community
Read Story
Blog | Jun 16, 2025

Meet the Community: Mark Kuchmas

Community
Read Story
image of Luciana Grasiele Nogueira
Blog | Jun 9, 2025

Meet the Community: Luciana Grasiele Nogueira

Community
Read Story
Blog | Jun 2, 2025

Meet the Community: Alyssa Hammers

Community
Read Story
Photo of Christi Wilson
Blog | May 27, 2025

Meet the Community: Christi Wilson

Community
Read Story
Blog | May 19, 2025

Meet the Community: Talia Cassel

Community
Read Story
Why We Participate in Research: Likins Family. Photo of Likins Family (Marc and Maggie and four children)
Blog | May 13, 2025

Participating in Research: Marc and Maggie Likins

Community
Read Story
Photo of Natalie Rex
Blog | May 5, 2025

Meet the Community: Natalie Rex

Community
Read Story
Photo of Paul Hardwick
Blog | Apr 28, 2025

Meet the Community: Paul Hardwick

Community
Read Story
Image of Joe Tyler and wife that says,
Blog | Apr 22, 2025

Participating in Research: Joe Tyler

Community
Read Story
Photo of Sydni Dupre
Blog | Apr 21, 2025

Meet the Community: Sydni Dupre

Community
Read Story
Photo of Natalija Stanojevic
Blog | Apr 7, 2025

Meet the Community: Natalija Stanojevic

Community
Read Story
POWER THE CURE FOR FRIEDREICH’S ATAXIA

The FA App

The FA app helps connect and empower individuals with FA worldwide so they can meaningfully participate in finding treatments and cures for FA. The FA App is available on iOS and Android.

Download FA App
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FAPG, FA HANGOUTS, FA TEEN HANGOUTS

Other Ways to Connect

There are many other platforms that individuals with FA and their families can use to connect with each other, both through FARA and externally. The Friedreich’s Ataxia Parents Group (FAPG) is a free international email-based support group for parents and guardians of children with FA or other childhood-onset/undiagnosed ataxias. The FAPG is run by a group of parents of individuals with FA.

Each month, FARA ambassadors host virtual Hangouts (for adults) and Teen Hangouts (for ages 13-19). FA Hangouts is an opportunity to hangout online for adults with any kind of ataxia and their friends, family, or caregivers. Contact fahangouts@gmail.com to get more information and join the email list. Teen Hangouts is an opportunity to hang out online for teens with ataxia, moderated by two adult FARA ambassadors. Contact farateenhangouts@gmail.com for more information.

Visit FAPG Website
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FOLLOW FARA FOR THE LATEST FA NEWS

Connect with FARA on Social

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YouTube
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LinkedIn
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Join FARA’s Community Newsletter

Stay up to date on the latest educational events for the FA community and more. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Choose your preferences using the form to the right and you’ll be on your way to staying connected and informed.

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