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FARAFARA Cure FA

Carly Magnuson

Carly MHi, I'm Carly Magnuson and I live in Deerfield Beach, sunny south Florida. I was diagnosed when I was 7 and I'm 28 now. I'm a Christian. I am 1 out of 4 daughters, and the only lucky one with FA. I played T-ball, a little volleyball, swam on the Deerfield Beach Dolphins swim team, and rode horses for hippotherapy, while FA was unknown to me; I thought I had a slight balance problem until I was 11 I found out the grim truth. I had spinal fusion back surgery in 2007 and became a full-time wheelchair user shortly after that. I graduated from Deerfield Beach high school in 2009.

I'm taking DCF online training courses so I can work at the day school where my mom is the director. I enjoy working with kids because they are unapologetically loving. I have a team called Carly's Cruisers for rideataxia, and we have been in the top five fundraising teams for the past two years in Clermont. I've been in 2 clinical trials and am in the biomarker study at UF. I've gone to medical symposiums followed by rideataxias in SoCal and Philly, and the symposium followed by a boat ride then the fabulous FARA energy ball in Tampa Bay. I absolutely love hanging out with my FAmily, so I'm excited about being a new FARA ambassador. I like to go shopping, go to the beach, work out, hang out with friends and family, go to church, watch movies, make keychains, sit in the sun, and listen to reggae. Sometimes you just got a roll with it. Xoxo


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